5 Tips For Newly Diagnosed IBD Patients

It can be so much to take in: the relief of finally having an answer combined with the fear of being diagnosed with a disease that you’ll have for life. With that in mind, here are some top bloggers on Irritable Bowel Syndrome to share their top tips and advice for newly diagnosed IBD patients.

Go online 

Paige from Paige Joanna: When you’re first diagnosed, all the information can seem daunting but I wish 13 years ago I had YouTube and Facebook, as in recent years researching videos and groups has really helped me.

It helps me know that you’re not alone and there is a community of people looking out for each other

Don’t over-google and don’t immerse yourself too quickly

Daisy from Coping with Colitis: It can become very overwhelming all at once.

When you google something, you immediately get the worst-case scenario and that just might not apply to you at all.

It’s OK to be angry

Bryony from A Belly Full Of: It’s okay to be upset too.

You will have ups and downs with this disease but ultimately you’ll come out of it a stronger person.

Build Your Own Network

Joanna from Crohn’s and Endo: In the first year, I had virtually no support at all.

My consultant and nurse gave me facts but they did it in a clinical fashion without emotion or realisation that I had to live with IBD every day.

By sharing experiences with those going through the same disease, you also build up the network to call on, on tough days.

Armed with ideas you can also speak to your medical team and ask their opinion.

Taking ownership can help you feel more confident.

Try and have a few essentials with you at all time such as Imodium and painkillers

Helen from The Plantiful Chef: I rarely use them but it gives me some security in case the worse happens.